There is a MS community online I'm a member of. I go to it for information since I'm new to this disease and hearing things from others with MS is a lot better than hearing it from a Dr. The things people go through with this disease is insane. The choice to take the Dmd's or not. Their daily symptoms. Worse flares. How they were diagnosed. Their hardships with the daily struggle this disease brings. The parents of young people with MS and how they cope. Relationship advice for caring for someone with MS. Stupid things people say like "how good you look" or how you don't "look" like you should be using a handicap placard...it's just incredible. I am thankful for the internet. It has brought me to these people, who without the internet I wouldn't know existed.
I would have to say having a neurological disorder is definitely not for the weak. It's changed me as a person already, and I haven't really overcame anything. I am still "normal". I have weird things that happen, but not necessarily interfere with life. I'm surely not ok with the fact that I may or may not be able to see when I wake up. Or I may pee my pants without warning. Or not be able to feel my feet (again). I am getting used to the fact of the unknown, and able to accept it in a way.
There has to be something that can be done about this though. How can normal people who were just living their lives be so dramatically changed overnight and nothing can be done to prevent it or make it better...other than the dreaded steroids.
What the hell is this caused from? I've read about "gut bacteria" or a link in Mono...but there isn't any proof of anything. Environmental links due to more cases farther from the Equator. I live in Florida, have been in the sun most of my life, and don't have a Vitamin D deficiency-so how is that a link? Something HAS to be done about this. ALS, MS, Parkinsons, Alzheimers-no cure for the most life changing disease in the world. That doesn't even make sense. Things "cause" cancer, things "cause" strokes, things "cause" heart attacks...but a disease that changes your brain, affects your daily life, your independence has no hope for a cure or prevention. Nothing is known about this disease and it pisses me off.
Don't necessarily know why I'm ranting...just opened the computer and started typing..so here's some pics of my brain! The White spots are my lesions.
Sunday, April 29, 2012
Contrast,
cure,
disease,
dmd,
Lesions,
many scars,
MRI Scan,
msworld.org,
multiple sclerosis
Many Scars.
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