A text post has seemed well overdue!
Hope all yall are getting along well.
Newish updates....
Went back to work 4 hours per day almost 2 months ago. Yay!
It's good to have them be able to work with me and accommodate my needs. Another person has been filling in for me while I was off, so he's happy to have me in there. I've missed those people more than I ever thought I would so I'm so happy just to be back for their company as well as a little money.
They pick and bother and bug the shit outta me...but I love love love every minute of it.
I haven't heard from disability yet. Everytime I check they still haven't made a decision. I went to the Dr for them about 6 weeks ago, so hopefully I hear back soon. He agreed for sure I was screwed in the hand department.
Things are pretty much exactly the same as far as this flare goes. Complete body numbness but front of left leg, butt, face & neck. I can tell that when I'm tired, which has been often lately, my hands like to get worse or like taper in severity mid day-evening. Annoying as hell. I can also tell when I wake up how they're going to be throughout the day. It's really strange. Almost like I'm becoming in tune with them like I've adjusted completely. Humans are weird, man. My legs, mainly the right one seem to be weaker as of late...scaring the shit out of me.
I've been testing my cold/heat intolerance to the max lately. I just want to figure it out before I get all weird about being in the heat all summer. I'm new to this and thoroughly fucked anyhow, so why not know my limits early on in this diagnosis? Just my way of thinking. Since I live in Florida, I don't want to test this theory in July or August. Even Non-msers feel like shit in those months. Humid stagnant Florida air will do that to you tho. Anyhow, I've been outside a whole lot. Beach, fishing multiple times in multiple temps/wind, on the river (in a boat) from 9-4, hanging poolside at one of my bffs house for hours on end...and I seem to be doing ok with it.
Last summer I stayed out of the heat so I have no basis to go on besides the previous summer when I was 70+ lbs and didn't know I was diabetic...so I felt like shit 79% of always. So, I'm testing this out. If I do Come out of this flare....which please for the love of God give me my freaking hands back. PLEASE. .....I gotta figure out something to do for next winter. That'll be 2 gnarly & disabling flares in the winter.
Been wavering off my hardcoreness of organic living a tad bit. I still do it, and won't eat anything pre made or out of a box yada yada, but I have let myself indulge a bit. Frying fish, grits, pizza, candy....all in moderation of course. If I feel like its making me feel weird I go headstrong into it for a few days to cleanse in a way I guess. ?? It makes sense in my head at this moment to eat great, but still enjoy things, ya know? Most people think I live off fruits and nuts like a damn gypsy or something...
I did add caffeine back in when I went to work. I cannot, not have coffee in the morning at work. It's been a ritual for years. Gets my day started off right.
Been going to church every Sunday for awhile now. Finally found one that hits me right in the soul and feels right to be there. Love the band. Love. I can't express that enough. They're phenomenal.
I do really hope yall are all doing good! I'll make a video soonish. This was only accomplished because I'm on my phone! ;) Xoxo
Random pics from recent days...
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